It was back to reality for both Ed & I today and let me say it was rough getting up when the alarm sounded at 5:30am! As always, our mini-cation went way too quickly but we had a great time! Our three days were jam packed with activities and didn’t have much down time except for sleeping! I will probably need the rest of the week to recover! We went on the Original Ducks tour, rode the Northern Railway train, mini golfed, went to Mount Olympus & Noah’s Ark. In between we took in some night life and of course yummy food! It was so nice to get away from the daily grind if only for a few days and be an out-of-towner J Although I’m paying for it dearly now, it was well worth it!
We ended up coming back on Monday night instead of Tuesday morning because, frankly, we missed home and wanted to get a good night’s sleep in our own bed. I have been experiencing extreme discomfort since my awful ride on the Hades rollercoaster on Sunday so I was eager to get back to the comforts of home. It was then I realized that, although my PT didn’t say anything about not riding rollercoasters, it probably wasn’t the greatest idea given my current condition (for that information click here). Let’s just say I probably won’t be riding rollercoasters again for quite sometime (which means we have to cancel our Great America trip over Labor Day weekend L). I have been stiff with limited range of motion and pain shooting down my neck and arms since Sunday and I was so grateful that my PT could squeeze me in yesterday to get a treatment! I’m feeling a bit better today but not very much. Ed asked me this morning if I felt as awful as I looked – gee thanks! On Tuesday, I also had my long awaited appointment with my new Rheumy and I must say I’m thrilled that I can kick my other one to the curb. We had a great conversation and she was very thorough with my history and asking me questions, etc. I felt very comfortable with her and felt like she was taking me seriously. Based on all my blood work results and other test results, she confirmed my Lupus diagnosis (shucks!) but wouldn’t change any of my treatments/medications that I’m currently on (hooray no more pills!). She explained my results from my other blood work to me and said that nothing really concerned her at this point. The only not so good thing she noted was my neck/spine problems associated with the TOS but she said she would leave that to my PT. She ordered some additional blood work but I am confident that my levels will all be fine so that means I won’t have to see her until February! All in all a great ending to a terrific mini-cation.
My other big news came before we left for our mini-cation. Earlier this month I had submitted this blog for consideration to be posted on the The Lupus Magazine website. The morning we left, I was contacted by the editor and told that it was going to be featured on the website! Needless to say I was ecstatic and so happy! Here is the link to my blog on the website - (5th one down).
This means I’m just that much closer to creating more awareness as well as meeting people who share my mission of advocacy, education and research. I’m thrilled to have more readers and make more friends along the way. This has been quite the journey & experience so far and it can only get better. Mostly, I so incredibly grateful for all of the wonderful feedback and support that I’ve gotten thus far – I wouldn’t be where I am today if not for you!Till next time…
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